Chronic fatigue syndrome, sometimes called
myalgic encephalomyelitis, is a complicated disorder
characterized by debilitating fatigue that does not improve
with bed rest and may worsen with physical or mental
activity. Often there are additional nonspecific symptoms
such as; a sore throat, headache, tender muscles, joint
pain, difficulty thinking and loss of short-term memory.
Chronic fatigue syndrome is hard
to diagnose because a single diagnostic test does not
exist and there is no identifiable cause of the illness.
The syndrome is therefore undiagnosed in an estimated 80
percent of people living with the illness. Chronic
fatigue syndrome is more common in females than males and
affects all racial and ethnic groups, particularly those
in the 30 to 45 age group.
Because the medical profession,
let alone the general public does not understand the
disease or often does not even believe it exists, many
patients report that a chronic fatigue syndrome diagnosis
carries a considerable social stigma, and has frequently
been viewed as malingering, hypochondriasis, phobia,
wanting attention, or yuppie flu.
Causes and Incidence
The cause of Chronic Fatigue
Syndrome is unknown but there are many postulations that
it may occur after viral infections, bronchitis,
mononucleosis, hepatitis, glandular fever or intestinal
illness. Recent studies have shown that inflammation of
nervous system pathways, acting as an immune response,
may play a role as well.
One trial suggested that exposure
to childhood trauma was associated with a six fold
increase in the risk of having chronic fatigue syndrome.
Sexual abuse, emotional abuse and emotional neglect have
also been associated with chronic fatigue
syndrome.
A number of conditions overlap or
coexist with chronic fatigue syndrome and have similar
symptoms. In fact, many experts believe fibromyalgia is
simply another variant of chronic fatigue syndrome or
different manifestations of the same disease.
Signs and Symptoms
The characteristic symptom is
prolonged, often overwhelming fatigue which is commonly
associated with a varying complex of other symptoms that
are similar to those of many infections. Chronic Fatigue
Syndrome can last for many years.
The following description of the
plight of one woman in her own words is
typical:
Coming back from a tiring and long
overseas business trip with what I thought was a bad
cold, I began to feel very tired, had headaches, muscle
pains and joint pains. Initially I just thought I had
picked up a bad case of flu, but over time the tiredness
got worse. I visited my doctor and there started a
procession of diagnoses which included; thyroid problems,
depression, pre menopause. None of the treatments and
drugs prescribed helped, instead things got considerably
worse.
I was trying to hold down a
responsible position as national sales manager for a
major pharmaceutical company and having to come home
twice a day to get a half hours sleep, then eventually
getting home so tired I found myself climbing up the
stairs on my hands and knees. Finally when I had to get a
chair to sit on while showering I called my company and
resigned. The human resources manager suggested that
instead I take medical leave and referred me to a
specialist. This time the diagnosis was sleep apnea. In I
went for tests at a sleep clinic and again wrong
diagnosis.
By this time despairing as
otherwise healthy 48 year old would be, at last I came
across a doctor who said she had suffered from the same
symptoms and it had turned out to be Chronic Fatigue
Syndrome. With her support, sleeping as much as 16 hours
a day and 2 years off work I recovered to the point where
I could take on part time work again and eventually full
time work in a less stressful position.
Even now some 7 years later I
still need to sleep as much as 12 hours a day. Over the
years I have met many others who suffered from CFS,
including one young and very fit professional athlete.
This is a serious condition which is far more common than
anyone realizes.
Diagnosis
Because the cause and nature of Chronic
fatigue syndrome are still unknown, no single test
unequivocally confirms its presence. Therefore diagnosis is
based on patient history and should include, severe chronic
fatigue of six months or longer duration with other known
medical conditions excluded by clinical diagnosis.
Concurrently a patient must have four or more of the
following symptoms: substantial impairment in short term
memory or concentration, a sore throat, tender lymph nodes,
muscle pain, multiple joint pain without swelling or
redness, headaches of a new type, pattern or severity,
unrefreshing sleep, and post exertional malaise lasting more
than 24 hours.
Treatment
No treatment is known to instantly
cure CFS. Symptomatic treatment may include a combination
of several modalities. Medication to treat depression,
anxiety, pain, discomfort and fever are commonly used.
Hidden yeast infections may be present and need to
treated. Anti viral drugs can be tried. Cognitive
behavioral therapy for chronic fatigue syndrome can be
useful in helping patients to live with their
condition.
Many patients prefer the natural
approach to the treatment of chronic fatigue syndrome,
this involves a long and gentle process to help rebuild
the immune system and help the body to detoxify itself
and is likely to involve; complementary or alternative
treatments, such as massage, acupuncture, chiropractic
care, yoga, stretching, or self hypnosis. Some research
has found that natural D ribose supplements may
significantly improve the symptoms of chronic fatigue
syndrome, with particular benefit in study participants
energy level and overall wellbeing.
Several studies
in China have indicated acupuncture may help
treat chronic fatigue syndrome. A development from this
is the recent advent of LifeWave
Y-Age acupressure patches which are reported to have
been used with considerable success in reducing symptoms
substantially.